The last two years have been a humbling process as we have
been handed diagnosis after diagnosis telling us what was evident right after
we took custody. That our little guy wasn’t nearly as healthy or mentally
stable as the Russian paperwork made him sound.
You’d think it would get easier after a spell, that you’d
develop a thicker skin each time you accept a new name for a set of personality
quirks; a label that helps professionals know how to approach your child. A
special set of words that opens doors to extra assistance because your kid is
qualified.
But it doesn’t.
Each one comes like a swift kick in the gut. A chink in your
armor. And the latest one isn’t any different.
Our paperwork is back, the board of disabilities has taken
my son into their database. My son is officially disabled.
Disabled.
It is so easy to park myself on that word. To feel
overwhelmed by its implications. To be not quite ready to call myself the
parent of a disabled child (even though I embraced the roll a long time ago).
To be emotionally blinded by a label that doesn’t change my child in the
slightest bit.
And how weird it is that the only thing that this emotionally
charged label really changes is how my son’s needs impact our finances. How
many services that used to cost us money will now be provided free of charge
because he owns a different word. A word that makes him qualified for
government assistance.
Disabled. Such a bittersweet word.
Oh my gosh, that word should never be used with a child in this world. How very sad... but as you also said, now financially you can have assistance with his needs. I'm sending prayers of strength for you and your family.
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